WG4. ICT solutions and dissemination: website, secured interface connection to databases

Goals and deliverables: Dissemination and interaction with adjacent research initiatives and consortia (e.g. IRDiC, or ERNITAS = ERN for ID, TeleHealth and Syndromic malformations), avoiding redundancy. Regular (web-based) expert meetings, STSM, training schools within certified European Centres of excellence and European excellence networks (ERNs) on rare diseases, IRDiRC consortium, connection to ongoing research programs. Yearly participation in main international conferences on related topics (Month 12). This WG works closely with the STSM committee and the Workshop Task Committee.

Working Group 4 members: Andrew Fry, Stefan Barakat , Ian Bamsey (SME), Jim Barkovich, Andreas Kremer

Back to Working Groups.